Friday, April 27, 2018

Sierra Leone government urged to prioritise epilepsy


By Kemo Cham

The Ministry of Health and Sanitation (MoHS) should pay more attention to Epilepsy given its increasingly high prevalence in Sierra Leone, an association representing suffers has said.
The Epilepsy Association of Sierra Leone said Monday there is a need for the ministry to take charge of provision of medication and other services that ensure sufferers get reliable treatment and live comfortable lives. The call was made as the country joined the rest of the world to commemorate the International Epilepsy Day.
The day set aside by organisations representing epilepsy sufferers falls on the second Monday of every February. This year it falls on February 12.
In Sierra Leone, the Epilepsy Association say there are at least 5000 people suffering from the brain condition which leads seizure. Experts say it is caused by various factors, usually at young age, especially during child birth. If not detected early, the condition eventually develops at some point in one’s life.

According to Professor Radcliff Lisk, the Coordinator of the National Program of the Epilepsy at the Ministry of Health and Sanitation, which works directly with the association, elderly people too can develop epilepsy as a result of horde of factors.
“This is a condition with no barrier. So everyone should be thinking if they have anything in the brain, like tumor, stroke, or any kind of infection,” he said.
The World Health Organisation estimates that there are 1.4 percent of people who have epilepsy in Africa, meaning out of every 1000 people, 14 are epileptic. This compares sharply with the 0.5 percent rate in in the developed world. This huge difference in prevalence is also attributable to levels of services provided to sufferers.
Organisers of the International Epilepsy Day say it is crucial to focus public attention on the condition and get people realize its dangers and how to prevent it. There is also need to handle issues of stigma and discrimination of people suffering from the condition.
The global theme for this year’s commemoration is: ‘More than Seizures.’ Organisers say this is meant to be interpreted as the sickness goes beyond its usual symptom of seizure, that it also has to do with sufferers’ personal relationship, stigma, among others.
Locally the theme was re-coined as: ‘This is me.’ This, explained Professor Lisk, is meant to encourage people to come out rather than hide their status. In other words, sufferers are encouraged to come forward for treatment.
Epilepsy is not a curable illness and therefore sufferers are supposed to be on long term medication as treatment. But this also means there has to be constant availability of medication.
Currently the epilepsy association is responsible for ordering medication, mainly with the help of international donors. The association wants the ministry to take over that and ensure that medications are always available in hospital.
“We agree that the MoHS has a lot more problems than epilepsy, like high maternal and infant mortality rate, but we don’t want them to neglect this condition too because the people who are affected are also significant in number,” said Professor Lisk.

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